Nadia closed out the week with her highest weight gain in the span of a week yet. She gained 170 grams since last Sunday. She continues to grow and cry and we are thankful for that.
Tash is going for a procedure today and we are hopeful that she will start a regimen of Remicade this week. Of course we are also hope that the new medicine will work and give her some relief.
Living in the Ronald McDonald house has brought many things to light for me. One, it seems many people go through some pretty rough stuff so it is comforting to know we are not alone. Two, I met a man yesterday who has Crohn's Disease and his last child also was in the NICU for 11 weeks as their child was born 12 weeks early. He was in the hospital every two months with flare ups and he had one when his child was in the NICU.
Later in the day I wound up speaking with his wife and she said it got to the point where it was laughable as she would go downstairs to see her husband and then upstairs to see their baby. Just when you think you are alone you meet people who have gone through pretty much exactly what you are going through. I find strength when I can relate to someone as their words tend to mean a lot more to me.
The good news for this man was that his doctor's chose to put him on Remicade two years ago and he has not had a flare up since. We are hopeful that Tash will get the same results.
With that update I need to wrap up my literature review tonight and then write a small 4-6 page paper and possibly do some reading as well.
Oh.... on Friday we had dinner at the hospital as I went to Sawa and picked up some sushi. IT was not the worst place I have ever been but it is the second worst. Kicki's in Matawan is another place to avoid.
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